Publications (32) Ana Inmaculada Torres Ortuño publications

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2025

  1. Psychosocial Care During Novel Therapies in Haemophilia: A Psychological Framework

    Haemophilia

  2. Recommendations for Psychosocial Support during Gene Therapy: Results From an EAHAD Interdisciplinary Roundtable

    Haemophilia

2023

  1. Impact of COVID-19 on professionals and patients in haemophilia care – The perspective from the EAHAD Psychosocial Working Group

    Haemophilia

  2. Nonpharmacological treatment for coping with pain

    Blood coagulation & fibrinolysis : an international journal in haemostasis and thrombosis, Vol. 34, Núm. S1, pp. S19-S21

  3. The results of a survey about psychosocial care throughout Europe

    Haemophilia

2021

  1. Quality of life, perception of disease and coping strategies in patients with hemophilia in spain and el salvador: A comparative study

    Patient Preference and Adherence, Vol. 15, pp. 1817-1825

  2. Validation of the spanish version of the VERITAS-PRN scale to assess adherence to on demand regimens in patients with hemophilia

    Patient Preference and Adherence, Vol. 15, pp. 967-974

2020

  1. "He's a normal kid now": An ethnographic study of challenges and possibilities in a new era of haemophilia care

    Journal of Haemophilia Practice, Vol. 7, Núm. 1, pp. 150-157

  2. "What more can we ask for?": An ethnographic study of challenges and possibilities for people living with haemophilia

    Journal of Haemophilia Practice, Vol. 7, Núm. 1, pp. 25-36

  3. Haemo-adhaesione: A new measure of adherence for adolescent and adult patients with haemophilia

    Patient Preference and Adherence, Vol. 14, pp. 455-465

  4. Hemophilia carriers: quality of life and management at different life stages

    Blood coagulation & fibrinolysis : an international journal in haemostasis and thrombosis, Vol. 31, Núm. 1, pp. S12-S14

  5. Navigating uncertainty: An examination of how people with haemophilia understand and cope with uncertainty in protection in an ethnographic study

    Journal of Haemophilia Practice, Vol. 7, Núm. 1, pp. 158-164

  6. Treating for stability: An ethnographic study of aspirations and limitations in haemophilia treatment in Europe

    Journal of Haemophilia Practice, Vol. 7, Núm. 1, pp. 165-172

2019

  1. Adherence to prophylactic treatment

    Blood Coagulation and Fibrinolysis, Vol. 30, Núm. 1S, pp. S19-S21

  2. Coping strategies in young and adult haemophilia patients: A tool for the adaptation to the disease

    Haemophilia, Vol. 25, Núm. 3, pp. 392-397

  3. Using the Hemophilia Joint Health Score for assessment of children: Reliability of the Spanish version

    Physiotherapy Theory and Practice, Vol. 35, Núm. 4, pp. 341-347

2018

  1. Effectiveness of the Medtep Hemophilia online platform for adherence to prophylactic treatment in haemophilia patients: Results from a 1-year observational study

    Haemophilia, Vol. 24, Núm. 3, pp. 452-459

  2. Parental eating disorders symptoms in different clinical diagnoses

    Psicothema, Vol. 30, Núm. 4, pp. 382-387

  3. The behaviour and perception of illness: modulating variables of adherence in patients with haemophilia

    Vox Sanguinis, Vol. 113, Núm. 6, pp. 577-583

2017

  1. Analysis of the familiar psychopathology as a therapeutic tool

    Anales de psicología, Vol. 33, Núm. 3, pp. 597-604