Ética y protección de datos de salud en contexto de pandemiauna referencia especial al caso de las aplicaciones de rastreo de contactos
- Ausín, Txetxu 1
- Andreu Martínez, M.ª Belén 2
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1
Instituto de Filosofía
infoInstituto de Filosofía
Madrid, España
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2
Universidad de Murcia
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ISSN: 0211-402X, 2014-881X
Year of publication: 2020
Issue Title: Ètica i salut en temps de pandèmia. Reflexions sobre cures i justícia social
Issue: 65
Pages: 47-56
Type: Article
More publications in: Enrahonar: an international journal of theoretical and practical reason
Abstract
The analysis and massive treatment (big data) of health data using artificial intelligence algorithms, as well as platforms and applications for contact tracking and geolocation, have been proposed as necessary tools to successfully manage a situation like the current COVID-19 pandemic. Examples such as those from South Korea, Norway or Singapore seem to be having an impact and Europe has been quick to endorse them, although without losing sight of its own regulatory framework, the protection of fundamental rights, and respect for basic ethical principles. We raise some ethical and legal questions regarding the processing of health data in a context of public health emergency such as the present one: legitimacy, limitations to consent, public/private relations, security, and privacy, among others. To this end, we take as a reference the EU General Data Protection Regulation (GDPR), recommendations of the European Commission, guidelines of the European Data Protection Board (EDPB) and the Spanish Data Protection Agency (AEPD), pronouncements such as that of the Spanish Bioethics Committee or the recent European framework on digitalisation (February–March 2020).
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